Thank you to everyone who helped with the Energy for Life Walk in 2011!
If you want more info about the results of the walk, go here.

On September 17th, 2011, 3 days before my 33rd birthday, the UMDF (United Mitochondrial Disease Foundation) is holding a walkathon to support mitochondrial disease.  It is called the Energy for Life walk.  I have been helping a great amount with organizing the event.  I was so happy that Deidra (the event's organizer) had things for me to do.  It has really made me feel useful for a change.

I would REALLY like you're help!  The walk is being held in order to promote awareness of mitochondrial disease as well as raise funds to help find a cure.  UMDF uses the money raised for research which is currently being done to help find a better treatment among other things.

What can you do to help?  As always, I'll give you a few options.  I'm all about options.  I have created a team called Team CTS, or Team Cure This Shit.  I thought I'd keep my foul mouth to myself so we decided to abbreviate it.  If you would like to join our team and walk 3 Kilometers (1.8 miles) with us on Sept. 17th, please go to my team page and click "Join Team".  Then you can collect pledges from your friends, family, coworkers, etc.  An added bonus... Anyone who walks for Team CTS will have the opportunity to join us for an after walk party with free food, drinks, and fun!  So, join today!

Team CTS

If you can't or don't want to walk, you can always "virtually walk" and collect pledges from your friends, family, coworkers, etc.  In that case, you can still join the team by clicking the link above and sleep in on Sat. Sept., 17th.

If you don't want to bother your friends, coworkers, and family (even though I'm sure they'd be more than happy to donate to this great cause that may help find a cure/treatment for this awful disease I'm going through), you can always just donate money yourself.  Tight on cash???  I understand.  I've been through hell because of this damn economy myself.  I'm sure, however, that you can skip eating out for lunch one day or skip your Venti White Chocolate Mocha Caramel Cappuccino Latte with extra whipped cream just once and donate $5 to a cause that could make my life soooooooooo much better.  Wouldn't that make you feel so good; to make my life soooooooooooooo much better?

If you would like to donate, go to my personal page and click "donate".

Personal Donation Page of Robin Jones

It will only take a couple of minutes.  You can do it while you're drinking your homemade coffee with regular creamer.
Please take 2 more seconds to "Like" the facebook page.

Energy for Life Walk Kansas City Facebook Page

Garage/Bake Sale Fundraiser Update

In case you didn't read my post on the main page, the fundraiser was a HUGE success! Thank you, thank you, thank you!!! I could not have done it without all of the wonderful help from my family, friends, friends of family, and family of friends.

I was able to order my wheelchair as well as sign up for the umdf symposium in Chicago. I will also be getting a wheelchair lift for our SUV so that I can transport the wheelchair wherever I need it. Once we have accomplished all of that, we will be working on building a ramp of some sort into the house. Luckily, all of my living space is on one level. However, that level is upstairs. So, we will not figure out how we will work out wheelchair access to the main level until all of the above is accomplished first.

I have heard from a few family members that there are a few people that have still wanted to donate. However, the ChipIn that I created ended on May 14th. I honestly never imagined so many people would be so generous and willing to help. I have added another link below that you can still use to make a donation if you like. I appreciate any and all donations since this disease is causing me to make a LOT of adjustments to my life (not including the ever lasting medical bills).

Even more than money, we always need help with other things around the house or with the kids. I put together a care calendar at one point. That helped greatly for a few months. Lots of people signed up to help out with meals, transporting the girls to soccer practice, etc. However, that has fell by the wayside. I understand. I only have one person signing up on the care calendar now. I'm sure everyone just forgot about it since my original email a few months ago. I can't remember what I ate for dinner last night so I completely understand. However, we could still always use help from time to time. If anyone ever wants to come help with things around the house, we would be greatly appreciated.

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