Thursday, February 10, 2011

Just keep waiting...

Just keep waiting, waiting, waiting... (sung to the tune of "just keep swimming" by Dory)

I'm going to go crazy! (more so, at least)


Bibliotekaren said...

Hang in there -- you're getting close.

Hey, I've finally got an appointment with a Mito/Metabolic Neuro in Texas at the end of April!

Am really hoping that this appointment will provide information that helps with the stuck feeling of being undiagnosed and direction for the next steps.

Take care,

Robin said...

Yay! I'm so happy you finally got an appt. Now you get to "just keep waiting, waiting, waiting.." ;-)

Brye said...

I am a mom of 4 and was diagnosed with POTS just over 3 years ago. I've enjoyed reading you're blog and I'm sorry you're struggling. I was an ER nurse as well prior but am unable to work. I also struggle with how to deal with my kids and how much info to share. That book brought tears to my eyes as well.

Just wanted to wish you well. Hope they can provide you with some answers and good treatment options. I'm stalled right now. I would like to feel better but thankful I'm not feeling any worse. I feel like I'm eeking by and barely able to keep up with my family. There's a lot of guilt for me regarding not being able to play with my kids and it's hard to explain why to them.

I saw your girls weekend was at Lake of the ozarks. We've spent several thanksgiving weeks there. Beautiful and less crowded during the off season. Hope best wishes to you and thanks for sharing your story!!