Answers, Finally

This post will probably be a "To be continued..." post.  I am well into the negatives with my spoons right now.  However, I wanted to update everyone as soon as possible.  So instead of typing for a little bit, saving it, typing more, saving it, and then posting it when I finally finish, I will just post  when I type it and then post more later.

I have been diagnosed with mitochondrial disease.  Alright, let me know if you have any questions.  Talk to you soon.


Ok, just kidding.  I'll elaborate.  Mitochondrial disease is a rare genetic disorder that affects the mitochondrial in the cells of the body.  Since the whole body consists of cells, this disease can affect every organ system in the body.  However, there is a wide spectrum of mitochondrial diseases ranging in severity.  On one hand, multiple organ systems are involved, symptoms begin at an early age (childhood), and life-span is shortened.  On the other hand, someone can have very little symptoms, no adjustment in life-span, and live a normal life.   I am somewhere in between.  Dr. Shoffner stated that if I take care of myself, this will not have an affect on the length of my life.

However, there is no cure for mitochondrial disease and there really isn't a good treatment.  At this time, the treatment consists of CO-Q10, Riboflavin, and L-carnitine.  These are all over the counter "medications"/vitamins.  On some individuals these things work well to decrease symptoms.  On others (most) it does very little, but may help with long term health.

To be continued...