Saturday, June 2, 2012

My Screw Up

I screwed up today.

At about noon my 13 y/o daughter had a dance performance.  I woke up a little after 9am and we needed to leave around 11:30.  We planned on leaving around 11:15am.  That way it guaranteed we would be out of here by 11:30.  Most people would think that 2 hours and 15 minutes is more than enough time.  However, for someone with mito, rushing is not an option.  I had to take a shower with my younger daughter as well as start IV fluids.

In addition to that, I needed to eat breakfast.  Oh, but that's where I went wrong.  I completely and totally forgot to eat breakfast.

When I first woke up I had my wonderful husband bring me a cup of coffee like he does most weekends.  I usually drink my coffee for a short time before I then ask him to bring me some breakfast.  This morning, however, I completely forgot.  I was too busy thinking about the need to shower, what time we needed to leave, how long I needed to get ready, don't forget to start my fluids, interrupted by the non-stop talking 5 year old, etc. etc.

As I got ready my tremulousness and overheating with excessive sweating got worse and worse.  I just kept thinking that I was dehydrated and I had too much coffee.  So I continued to get ready while shaking like crazy and trying to stay dry, though not successfully, all the while wondering why my body would not settle down.  At one point in time my husband even asked me what we were going to do about lunch since we would be there right at the lunch hour.  I asked him to fix sandwiches for everyone.  And despite this entire conversation about lunch, It still didn't pop into my head that I hadn't eaten anything yet.

My husband finally said, "Did you ever eat breakfast?" before I realized, after some thought, that I had not eaten anything at all.  No wonder I was so shaky and sweaty!!!  I quickly ate some of the sandwich I was going to take for lunch, but I think it was too late.  Since I hadn't eaten I also hadn't taken my pills.  So here I am, trying to take my pills and eat something just minutes before we have to leave and I have to exert a lot of energy... more so than I already had.

Well, I think it was way too late.  Luckily I did okay long enough to watch my daughter perform.  Which was so cool to watch, by the way.  I think she needs to get into dance.  However, very shortly after her performance I went downhill... fast.  My hot flashes started again.  My head and all of my extremities felt very heavy.  I was sweating again... bad.

We quickly left the carnival where the performance was and my husband took me home.  On our way home we stopped to get a chocolate shake because I had started feeling like I needed sustenance but solid food would not work.  However, by the time we got home just a short 5 minutes later, I was so nauseous that even a shake was not going to go down well.  I went straight to bed, threw a blanket over me, and didn't move for about 45 minutes.  If I did, I just knew the vomiting was going to start.

Luckily as the day went on I slowly started to feel better.  Laying flat in an air conditioned house and having IV fluids going eventually got me back to a level playing field.  However, I learned my mistake.  Slow down, think about what you're doing, and always remember to eat!!!

That's me!!!

And... as I will try to do all the time from now on... here are my favorite quotes.  Most of the time it will be the same couple of quotes.  However, I may switch it up from time to time based on my post.

" is ultimately the love and support of others that gives people the inspiration and courage to get through this challenging journey." -

"The cure for Mito is living life." - Amanda Perrotta

And last, but certainly not least...

To learn more about mitochondrial disease and how it affects people, please go to my page titled "What is Mitochondrial Disease" or go to 

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