However, I ended up being worried for no reason. She did not doubt my mito diagnosis at all. She asked a lot of questions about the pain meds but never brought up any concern that they were the cause of my GI problems. FYI... I was on a medication (Relistor) a few months ago which counteracts the effects of narcotic pain medication on the GI tract. The GI doc I've had for a little less than a year who put me on the Relistor also thought, at first, that the narcotics were causing all of my GI problems. However, since the Relistor didn't work, it proves that my problems are not from the pain meds.
When I left the appointment I actually felt a little down. At first I couldn't figure out why I felt that way, but after a bit of thought, I figured it out. If you have ever read my blog before you probably think that I have resigned myself to a lifetime of being sick. Sometimes, okay, most of the time, I probably display to the world that I don't hold out much hope of getting better. A lot of people call that being negative. I call that being a realist. Well, contrary to popular belief, I still hope and dream that I will be better again. I am also in denial every now and then. Usually I keep both of those things hidden from the world and buried deep inside. That way, I can't get hurt when those hopes and dreams don't come true.
Well, it obviously doesn't work. Come to find out, I was looking forward to my appointment with the GI motility specialist because I was holding out hope that she would have a better solution to my GI dysmotility. Instead, she said something that my previous GI doctor hasn't said. She said that I will be on laxatives to keep my system moving for the rest of my life and that there's not a whole lot more she can do. The only change she made was what I discussed above and the only reason she did that is because the medicine I'm currently on causes a lot of bloating. However, she didn't have any solutions to the lack of motility of my entire GI tract.
Those statements ended up being harder on me than I imagined they would. I guess I just held out too much hope that she, being a motility specialist, would have a better solution to my problems and would, therefore, be able to keep me from needing a G/J tube (feeding tube) in the future. However, if the motility specialist at a huge academic hospital doesn't have any better solutions, I'm probably out of luck. So that explains why I was little down/sad after my appointment.
On another note, while I'm talking about my current health status... I have ANOTHER UTI. That makes 4 in 13-14 months. That means that I need to see a Urologist. There's a good chance I have something called neurogenic bladder. One more thing to add to my list of health problems that are caused by my mito. You know, since I don't have anything else to worry about. I'll update on the bladder situation when I know something.