I have not been feeling well since the fundraiser. My pain has been worse and I have been more fatigued and weak. My headaches are bothering me a lot more recently as well. That is caused by both the POTS and the mito. In POTS, they call it coat hanger pain, because it feels like someone is sticking the end of a wire hanger in the back of my head. Okay, not really. It's because the pain forms a coat hanger shape in the back of the head, shoulders, and upper back. One of my favorite POTSy bloggers said recently that maybe she's being punished by mommie dearest for using wire hangers. I second that! I am this close (I'm holding my thumb and finger about 1/2 inch apart. Trust me. I am. I swear! Okay, you got me. I didn't really do it. But you get the point) to taking all of the wire hangers out of my house, just to see if it'll make me feel better.
|NO wire hangers... EVER!!!!|
Here is a link to information about pelvic organ prolapse...
On another, more pleasant, note, I have ordered my chair. A guy came a couple of weeks ago and brought a two chairs for me to test drive. However, I only tried one. I had already talked to him on the phone about a chair I found online. I had asked him if he recommended any other chairs because I had just done a little research and he knows all about different types of chairs. He said that the one I picked would be a great fit for me. It turns out that it was. I loved it.
Permobil - C300 Wheelchair
Unfortunately, it'll take 6 to 8 weeks to get it. So, once again, I'm counting down the days for something I'm waiting for. However, this time it's for something good; not a doctor's appointment or something.
Because the sale was so successful, we have raised enough money to go to the UMDF symposium in Chicago. My husband, mom, oldest daughter, and I are all going. We will be driving there as it's only an 8 hour drive. We will be driving up there on Thursday and back on Sunday. Unfortunately, I will not have my chair by then. I should be able to rent a scooter, however. I am really looking forward to it. I really want to learn as much as possible about this disease as well as talk to other people dealing with it on a day to day basis.
Well, I have more to say. Don't I always? You know, I always wonder why my two daughters never stop talking. Hmmmmm.... You think maybe they got it from me? So, like I was saying... I have more to say, but I'm getting tired. I will talk about the other things next time.